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Decode Duchenne

Free genetic testing, interpretation and couseling for individuals with Duchenne or Becker muscular dystrophy. Decode Duchenne is administered by DuchenneConnect and PPMD and is funded by BioMarin Pharmaceutical, PTC Therapeutics and Sarepta Therapeutics.


How Your Data Is Being Used

Have you ever wondered how your data in DuchenneConnect is used? Learn about studies and clinical trials that have utilized the DuchenneConnect data and/or recruited DuchenneConnect registrants.


Registry Data

See how you or your child compare to others in the registry. Families, clinicians and researchers can learn from the registry. Login to your account today to explore the newest information from more than 3,000 participants.


Direct Access Webinars

DuchenneConnect and PPMD present a webinar series that allows you direct access to experts in the fight to end Duchenne. Whether it's a researcher offering updates on a developing therapy, or experts in medical care, this series will help you keep up to date from the people making it happen.




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