Decode Duchenne

Decode Duchenne

Free genetic testing through Decode Duchenne

DuchenneConnect Video

DuchenneConnect Video

Watch our fun video to learn more about DuchenneConnect

Education

Education

Learn about Duchenne and Becker muscular dystrophy

Clinical Trials

Clinical Trials

Read our family-friendly FAQs on clinical trials

Live Chat

Live Chat

Log in to chat online with one of our Certified Genetic Counselors.

Registry Benefits

Registry Benefits

Learn about the many benefits of joining the registry

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Decode Duchenne

Free genetic testing, interpretation and couseling for individuals with Duchenne or Becker muscular dystrophy. Decode Duchenne is administered by DuchenneConnect and PPMD and is funded by Sarepta Therapeutics and PTC Therapeutics.

 

PPMD TrialReach

Find a Clinical Trial

Easily search our family-friendly summaries of clinical trials and research studies.

 

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PCORnet

DuchenneConnect is a member of PCORnet, the National Patient-Centered Clinical Research Network, an innovative initiative of the Patient-Centered Outcomes Research Institute (PCORI).

 

Duchenne Deletion Tool

Use this educational tool to help you understand if you/your child may be a candidate for an exon skipping therapy. This tool is only for individuals with a deletion of one or more exons in the Duchenne gene.

 

Direct Access Webinars

DuchenneConnect and PPMD present a webinar series that allows you direct access to experts in the fight to end Duchenne. Whether it's a researcher offering updates on a developing therapy, or experts in medical care, this series will help you keep up to date from the people making it happen.

 

  

 

Visit our Professional Portal

Fund Research

Donate to PPMD

In partnership with

Parent Project Muscular Dystrohpy
Save Our Sons - Duchenne Australia
Treat-NMD