DuchenneConnect Family Fact Sheet: Care and Management

There are many different ways to care for Duchenne and Becker muscular dystrophies. The goal of care is to provide the best quality of life through all life stages. In late 2009, we received guidance about care and management from the Centers for Disease Control and Prevention (CDC) expert Care Considerations panel.  You can read the professional articles here. You can view the family-friendly fact sheets about the Care Considerations here

The information in these pages is not meant to replace the knowledge and experience of your healthcare providers, but instead may give you tips about topics to discuss with your providers. Most of the care information is focused on Duchenne muscular dystrophy.  Care recommendations for Becker muscular dystrophy are important, but are still early in development.  Because the symptoms of Duchenne are generally more severe and happen earlier in life than symptoms of Becker muscular dystrophy, the recommendations in this fact sheet may be too strong or too early for people with Becker muscular dystrophy. These are important topics, though, for anyone with a dystrophinopathy to discuss with their health care provider.