• women who have a child or children with Duchenne or Becker muscular dystrophy
• women who have close family members with Duchenne or Becker muscular dystrophy
• women who have symptoms of Duchenne or Becker muscular dystrophy.
At DuchenneConnect, we believe that families need information to better understand and cope with Duchenne and Becker muscular dystrophy. This is especially important for women, who not only care for family members with Duchenne and Becker muscular dystrophy, but who also have to think about the effects of being a
carrier on their own health and reproductive choices.
There are ups and downs that come with having someone with muscular dystrophy in the family. Many issues need to be addressed, often at the same time, which creates significant stress for the entire family. Naturally, much of the focus is on the individual with muscular dystrophy, making it easy to put off important discussions about carrier status. Because discussions related to carrier status may be difficult and may cause strong feelings, it is normal for families to want to delay or avoid talking about them altogether.
It is important to remember, though, that women can be better mothers, sisters, grandmothers, and aunts if they also take care of themselves. As we work really hard to insure the best care and treatment for people with muscular dystrophy, it is also important to realize that Duchenne and Becker muscular dystrophy affect every member of the family in different ways. It is important for carriers and potential carriers to have the best and most accurate information in order to make good choices about their own health and reproduction.