MRI and CARDIOPULMONARY FUNCTION - Using MRI to Assess Cardiopulmonary Function in Duchenne

Frequently Asked Questions (FAQs) about this study:


What stage is this research?

  • This is an actively recruiting clinical trial.

 

What is the goal or purpose of this study?

  • The purpose of this study are to monitor long term changes in heart function and breathing muscles in children with Duchenne and to develop better imaging techniques to evaluate these muscles.

 

Who is the sponsor of this study?

  • This study is sponsored by The University of Florida.

 

What are the inclusion (enrollment) criteria for this trial?

  • Participants need to be boys with Duchenne who are between the ages of 5 -15 years old.

 

What do I have to do if I decide to participate in this study?

  • Participation includes Magnetic Resonance Imaging (MRI) of the heart and breathing muscles, breathing tests (called pulmonary function tests), exercise tests (using a stationary bike) and possibly an echocardiogram (ultrasound of the heart). 

 

Where does the trial take place?

  • This study takes place at the University of Florida in Gainesville, FL.

 

Are travel expenses to the study site reimbursed?

  • Travel reimbursement may be available based on the availability of charitable funding and the needs of the participant.

 

Why should I consider participating in this study?

  • Although the results from this study will not directly benefit you, the goal of this study is to learn more about the heart and breathing muscles. This information may help to develop better ways to evaluate heart and lung function in the future.

 

Where can I learn more about this study?

(Updated 4/27/2017)