MICROSOFT BAND - A Potential Outcome Measure for Boys with Duchenne

Frequently Asked Questions (FAQs) about this study:


What stage is this research?

  • This study is actively recruiting boys with Duchenne muscular dystrophy.

 

What is the goal or purpose of this study?

  • Researchers want to learn what functional activities can be measured while boys with Duchenne wear the Microsoft (MS) Band, a fitness tracking device.

 

Who is sponsoring this study?

  • This study has received sponsorship from Clark Construction, the Foundation to Eradicate Duchenne (FED), and ReveraGen BioPharma. The University of Pittsburgh and the Cooperative International Neuromuscular Research Group (CINRG) are involved with study planning and implementation. 

 

Who is eligible to participate in this study?

  • Researchers are recruiting boys with Duchenne, ages 4 years – 17 years old. Participants must have reliable access to wireless internet.

 

What do I have to do if I decide to participate in this study?

  • If you and your child decide to take part in this study, your child would be asked to wear the MS Band for seven straight days (10 hours per day and while sleeping). You would then take a break for a week, and following this break, your child would wear the Band for another seven straight days. During this time, you would be asked to complete daily logs about your child's activity and ensure the MS Band is plugged in and the battery fully charged each night. You will be asked questions about your child's daily routines and family experiences with the MS Band. Six months after your initial wearing period, you will be asked to complete these activities for a third period of seven straight days.

 

Where does this study take place?

  • This study is coordinated from the CINRG network site: the University of Pittsburgh in Pittsburgh, PA.

 

Will I get paid for participating in this study?

  • Yes, families who take part will be compensated to thank them for their time.

 

Why should I consider participating in this study?

  • While no personal benefit can ever be guaranteed by participation in a study, there are other benefits, including allowing you to play an active role in your own healthcare (or that of your child), gaining access to medical specialists that are normally not available to you or your child, and helping others by contributing to the better understanding of Duchenne.

 

Where can I learn more about this study?

  • For more information, please contact Annmarie Kelleher at 412-383-5045 or This email address is being protected from spambots. You need JavaScript enabled to view it..

(Updated 4/26/2017)