NONINVASIVE CARDIAC AND PULMONARY IMAGING - UF Wellstone: Failed Regeneration in the Muscular Dystrophies

 

Frequently Asked Questions (FAQs) about this study:

 

What stage is this research?

  • This trial is actively recruiting participants.

 

What is the goal or purpose of this study?

  • The goal of this study is to develop novel, noninvasive magnetic resonance imaging (MRI)  biomarkers to monitor disease progression in the heart and respiratory muscles and to investigate how these biomarkers are related to genetic modifiers in Duchenne muscular dystrophy.

 

Who is funding this study?

  • This study is funded by the NIH.

 

Who is eligible to participate in this study?

  • To participate in this study you must be between 5-18 years with a confirmed diagnosis of Duchenne. You must also be able to lie flat on your back for the MRI.

 

What do I have to do if I decide to participate in this study?

  • This study involves approximately 1 -1.5 hours of MRIs of the heart, chest, and abdominal muscles. Participants also complete noninvasive respiratory tests (such as forced vital capacity.

 

Where does this study take place?

  • This study takes place at the University of Florida (UF) in Gainesville, FL.

 

How many visits to the study site are necessary?

  • Participants come to UF for 5 visits over the course of 5 years (1 visit/year).

 

Is there any funding to help pay for travel?

  • Yes. The study pays for the cost of airfare and hotel for the participant and one parent/legal guardian.

 

Will I get paid for participating in this study?

  • There is a gift card provided to the participants after each visit is completed.

 

Where can I learn more about this study?

  • Please email Dr. Glenn Walter at UF at This email address is being protected from spambots. You need JavaScript enabled to view it..

 

(5/5/2017)