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Application and Eligibility

Resources for Providers and Families

 Frequently Asked Questions

 Contact a Decode Genetic Counselor 

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Decode Duchenne provides free genetic testing and counseling to people with Duchenne or Becker muscular dystrophy who otherwise could not afford genetic testing. Our process is simple: complete our one-page application and receive all the information and paperwork needed to have genetic testing performed through Emory Genetics Laboratory.

 

Our genetic testing includes deletion/duplication testing with automatic reflex to sequencing, targeted testing, or repeat testing for those with incomplete testing thus far. Our program can also provide specimen shipping kits and reimburse blood draw costs when needed. 

 

Three certified genetic counselors are also available to providers and families at any point during the testing process.

 

 

Ready to Apply? Get Started Here 

Need Help? Email us at This email address is being protected from spambots. You need JavaScript enabled to view it. or call 888.520.8675 option 1.

 

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Decode Duchenne is administered by DuchenneConnect, a program of Parent Project Muscular Dystrophy, and is supported by Sarepta Therapeutics and PTC Therapeutics.

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