Advisors

DuchenneConnect Clinical Advisors

The information provided on DuchenneConnect has been developed with the review, direction and advice from a group of experts in Duchenne and Becker muscular dystrophy. Advisors contribute to DuchenneConnect in many areas including reviewing educational materials, providing programmatic direction, advising on processes and procedures, and facilitating opportunities for outreach and collaboration.
 
  • Kate Bushby, MD, Professor of Neuromuscular Genetics, University of Newcastle upon Tyne, UK and TREAT-NMD Co-Ordinator
  • Linda Cripe, MD, Pediatric Cardiologist, Nationwide Children's Hospital, OH
  • Joline Dalton, MS, CGC, Paul and Sheila Wellstone Muscular Dystrophy Center, University Of Minnesota, MN
  • Tina Duong, PT, PhD, Clinical Research Manager, Stanford University School of Medicine, CA
  • Jonathan Finder, MD, Clinical Director, Division of Pediatric Pulmonology, Children's Hospital of Pittsburgh of UPMC, PA
  • Richard S. Finkel, MD, Division Chief, Neurology, Nemours Children's Hospital, FL
  • Katherine Mathews, MD, Child Neurology, University of Iowa, IA
  • Laura McAdam, MD, Developmental Pediatrics, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada
  • Lauren Morgenroth, MS, CGC, Operations Manager, TRINDS
  • Stanley F. Nelson, MD, Professor of Human Genetics, David Geffen School of Medicine, UCLA, CA
  • Shree Pandya, PT, DPT, MS, Co-PI of NY MDSTARnet, University of Rochester School of Medicine and Dentistry, NY
  • James Poysky, PhD, Child Psychology, Baylor College of Medicine, Houston, TX
  • Hemant Sawnani, MD, Assistant Professor, Pulmonary Medicine, Cincinnati Children's Hospital Medical Center, OH
  • Kathryn Wagner, MD, PhD, Center for Genetic Muscle Disorders, The Kennedy Krieger Institute, MD
  • Brenda L. Wong, MD, Associate Professor, Pediatric Neurology, Cincinnati Children's Hospital Medical Center, OH

DuchenneConnect Industry Advisors

  • David Cox, PhD, Clinical Research Advisor, Eli Lilly and Company
  • Joanne Donovan, MD, PhD, Chief Medical Officer, Catabasis┬« Pharmaceuticals
  • Diana Escolar, MD, Chief Medical Officer, Akashi Rx
  • Mary Frances Harmon, Senior Director, Patient and Professional Advocacy, PTC Therapeutics
  • Madhuri Hegde, PhD, FACMG, Senior Director, PerkinElmer
  • Edward Kaye, MD, Chief Medical Officer and Senior Vice President, Sarepta Therapeutics
  • Carl Morris, PhD, VP R&D, Solid Biosciences
  • Pankaj Patel, Associate Director, Advocacy, Bristol-Myers Squibb
  • Jon Tinsley, PhD, Chief Scientific Officer for DMD, Summit plc
  • Jodi Wolff, PhD, Patient Advocacy Manager, Santhera Pharmaceuticals

DuchenneConnect Family & Individual Advocate Advisors

  • Stacia Anderson, parent, Chicago City, MN
  • Brian Denger, parent, Biddeford, ME
  • Anessa Fehsenfeld, parent, Rockford, MI
  • Lisa Groeger, parent, Tucson, AZ
  • Stefanie Killian, parent, Rockwall, TX
  • Bob McDonald MD, parent, Jefferson City, MO
  • Thomas Neupauer, parent, Mill Valley, CA
  • Conrad Reynoldson, Duchenne MD, Seattle, WA
  • Ivy Rebecca Scherbarth, parent, Fort Collins, CO
  • Elizabeth Vroom, parent and President of Duchenne Parent Project of the Netherlands