DuchenneConnect Australia is for everybody

DuchenneConnect Australia is for everybody

It is important for all ages and stages – find out more

Education

Education

Learn about Duchenne

DuchenneConnect Video

DuchenneConnect Video

Watch our fun video to learn more about DuchenneConnect

Clinical Trials

Clinical Trials

Read our family-friendly FAQs on clinical trials

DuchenneConnect is for females too

DuchenneConnect is for females too

Rare girls with Duchenne and carriers are encouraged to join

Registry Benefits

Registry Benefits

Learn about the many benefits of joining the registry

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About DuchenneConnect Australia

DuchenneConnect Australia is a program of Save Our Sons in partnership with Parent Project Muscular Dystrophy (PPMD) in the USA. It is a patient registry that collects information about Australians with Duchenne and Becker muscular dystrophy and carriers of these conditions.

Duchenne Deletion Tool

Use this educational tool to help you understand if you/your child may be a candidate for an exon skipping therapy. This tool is only for individuals with a deletion of one or more exons in the Duchenne gene.

 

How your data will be used

Learn about the kinds of studies and clinical trials that will make use of DuchenneConnect Australia data. Read examples of recent studies and clinical trials that have utilised data in the US-based DuchenneConnect registry that has been collecting information about people with Duchenne worldwide since 2007.

 

Registry Data

See how you or your child compare to others in the registry. Families, clinicians and researchers can learn from the registry. Login to your account today to explore the newest information from DuchenneConnect Australia participants.

 

Direct Access Webinars

DuchenneConnect and PPMD present a webinar series that allows you direct access to experts in the fight to end Duchenne. Whether it's a researcher offering updates on a developing therapy, or experts in medical care, this series will help you keep up to date from the people making it happen.

 

Fund Research

Donate to Save our Sons

In partnership with

Parent Project Muscular Dystrohpy
Save Our Sons - Duchenne Australia
Treat-NMD